About Us

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Berkshire Lymphoedema Support Group

Committe members 2018-2019

Current Chair Jo Robinson phone 0118 9789730

Ann Pocock Treasurer

Andrew Lewendon

Barbara Browne

Fiona Williamson

Sally Joyce

Ruth Hilbourne

Sue Ryder Lymphoedema team

Fiona Harland

Jan Bell

nordic-walking

Do you have lymphoedema?

Would you like to learn more about the condition and meet others who are also living with lymphoedema?

The Berkshire Lymphoedema Support group started in 2014 and organises regular meetings at venues across Berkshire. Each meeting has a theme, at some meetings there will be a guest speaker or a discussion of some aspect of Lymphoedema, sometimes the focus is on other topics. Sometimes it may be a social event, there are always people willing to share their story of to listen to yours. Refreshments are provided and there is often a raffle to help raise funds for the group. At least one of the Sue Ryder Lymphoedema team aim to attend each meeting. You and a partner are most welcome to join any of the meetings.

Details are available at the Sue Ryder Lymphoedma clinics or can be sent or emailed to you, for further information or to arrange a lift to one of our meeings

  just contact Jo Robinson on 0118 9789730

International Awareness

Raising awareness of Lymphoedema research and development

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Current Research Studies

Flinders University South Australia

1) the impact of intermittent leg compression on chronic primary and secondary leg lymphoedema.

2) the impact of physical/mechanical stimulation on skin health facial oedema and appearance.

3) What is the direct patient cost of conservative treatment and management.

4) Wii the impact of a Wii yoga programme on arm lymphoedema.

5) Do conservative and surgical interventions influence the incidence of infection.

6) Can current lymphoedema assesment tools help with improving the ISL staging descriptions of lymphoedema.

7) Predicting tissue visco-elasticity and fluid movement in lymphoedematous limbs- how good is the indurometer.

 

Programme

Events for 2018

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     2018

 

 

 


Thursday 18th October 7.30-9.30 pm


Service by Emergency Rider Volunteers

Talk by Captain Kamran Irani chairman of the Oxon Bucks and Northants Blood Bikes

Presentation of this charities activities to provide an out of hours service to NHS hospitals delivering urgent supplies on liveried motorcyles.

Tonights Raffle fundraiser proceeds will be donated to the charity

One Pound for refreshments

at the Sue Ryder Duchess of Kent Hospice, 22 Liebenrood Road RG30 2DX

Information, Refreshments and support available at all venues


Thursday 15th November 7.30-9.30 pm

News from the British Lympoedema Society from their conference

with Fiona and Jan

One Pound for refreshments

at the Sue Ryder Duchess of Kent Hospice, 22 Liebenrood Road RG30 2DX

Information, Refreshments and support available at all venues

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Thursday 13th December 7.30-9.30 pm

Annual Christmas party

with our traditional “Red and Green” theme

One Pound for refreshments

at the Sue Ryder Duchess of Kent Hospice, 22 Liebenrood Road RG30 2DX

Information, Refreshments and support available at all venues

Extra Events

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